What are the Issues?

   the low priority given to this large group of people and the lottery of care which exists

   the need for accepted standards of care

  fragmented services and lack of co-ordination between hospital and community, health and social care

  gaps between perceived need, professional assessment and service delivery

  the need for ongoing, regular monitoring and assessment, particularly in degenerative and variable neurological conditions

  limited understanding by many health and social care professionals of the physical, psychological and social impact of particular neurological conditions

  ensuring that those affected are involved in the management of their condition

  the need to measure outcome of service provision in terms of the effect on quality of life